At age 13, our son Aren can’t cross the street by himself, or eat without dropping food all over the floor. He struggles with reading and has difficulty following simple instructions. He also has a speech impairment called cluttering that often makes his speech incomprehensible to others. On top of this, he is hyperactive and needs to burn off his immense energy frequently throughout the day.
Those were the words I heard over and over again when my oldest child was born 27 years ago. She will never read past a third grade reading level; she can only hope for a menial or labor-oriented job; this is the best her writing will ever be so maybe you should just accept it, maybe you are in denial. Sound familiar? I am sure that I am not alone as a mom. Many of us have heard these words from well-meaning and well-intended professionals who are only trying to help.
In July of 1990, I gave birth to a very healthy and beautiful baby girl, Laurin. I mean, she was adorable (seriously, picture the Gerber baby. That was Laurin.). She seemed to be doing everything ahead of the developmental milestones: crawling, sitting up, etc. But then, on Christmas when Laurin was five months old, my sister came to me and said, “I just tripped and knocked over some pots and pans behind Laurin and she didn’t startle.”
It is safe to say that this single moment radically changed my world.
Note: April is National Autism Awareness Month.
There was a time when I couldn’t even say the word out loud. It was too painful, too devastating to utter. I wanted to believe that if I didn’t say the word, it didn’t exist. But it does exist; it’s real, and it’s beautiful, and it’s challenging all at the same time. And whether I say the word or not, my son Chris has autism.
I’ve been on this autism journey for 30 years now, more than half my life. Back in 1990, when Chris was first diagnosed, there was no autism awareness month, because there wasn’t autism awareness. Family, friends, and neighbors looked at me quizzically when I shared his diagnosis. What does that mean? How did he get it? How do you cure it? But I did not have the answers. Even the multitude of doctors we saw could not provide the answers. Since that time, there has been an exponential increase in the number of children diagnosed, and almost everyone has been touched by autism in some way. So today, when a family shares the diagnosis, others are usually aware of what it means.
As I reflect on the past 30 years I recall so many memories. I remember, as if it was yesterday, sitting in the doctor’s office; the diagnosis confirmed my fears following months of research into what might be causing the unusual behaviors of our little boy.
Note: April is National Autism Awareness Month.
Just like any other school day, Eugene, my son with autism, left on the bus this morning to go to a day program provided by our school district. For the last 20 years, he and I wait for the bus by sitting on our front porch. As he steps on the bus, he shouts at me with his happy high-pitched voice, “Bye Mom!” This is our ritual to begin each new day, to meet that day’s challenges, emotions, promises and hopes.
In June this year, he will age out from the district program. I cannot help being emotional whenever I think about his first day of preschool and the journey that Eugene and our family have been on since then. On that day, I cried in the car for two hours after separating from my miserable, crying child.
Since that first day, school has been a challenging place for both Eugene and me. While Eugene was learning the alphabet and phonics, I studied the never-ending list of special education acronyms.
Just like other special education moms in this world, when my child cried about his school work, I wept on my steering wheel, but when he was happy in school, I felt like I had the world on a string. At times, figuring out how to navigate the world of special education for our son with autism while struggling with his atypical behaviors seemed like a brutal mission for a family like us, and we often felt we were not understood, not just because of our heavy Korean accents
However, our fundamental concern has not changed in these 20 years, and that is to help our son reach the final destination for his journey – Eugene being able to live an independent and inclusive life in the community. Of course, this is the same concern shared by thousands of moms and dads who have children with disabilities.
Note: October is National Disability Employment Awareness Month.
The New Jersey Division of Vocational Rehabilitation Services (DVRS), which receives Federal funding from the Office of Special Education and Rehabilitative Services’ Rehabilitation Services Administration, is pleased to share Joseph’s (pictured above) success story in honor of National Disability Employment Awareness Month (NDEAM).
Note: In recognition of National Disability Employment Awareness Month (NDEAM), Georgia Vocational Rehabilitation Agency (GVRA), a State VR agency which receives funding from the Office of Special Education and Rehabilitative Services’ Rehabilitation Services Administration, is pleased to share Burt’s success story.
Burt began his path to employment in a sheltered workshop in 2007, where he did packaging and sorting tasks. Burt’s fellow participants and supervisors said he was dependable and with the support of his sister, Christie, Burt had reliable transportation. While Burt sometimes had difficulty with decision-making, repetitive tasks were an area where he excelled.
Note: October is Down Syndrome Awareness Month.
Number One. “Did you know?”
They never complete the thought, as if just looking at him implies what they’re really asking. I ache to play dumb: Know what? That he would almost never cry as a baby and be a champion sleeper? That he would love to swim but hate to play soccer? That I could love him ‘til it hurts and still get so annoyed by some of his antics? As obnoxious as my brain screams for me to be, I simply answer “No. After losing the first one, I didn’t want to take any chances with this very wanted baby.”
Note: October is Learning Disabilities/Dyslexia/Attention Deficit Hyperactivity Disorder (ADHD) Awareness Month.
A teacher can make the difference between a good day and a bad one.